Day one of the Cortef susp. to Cortef pill.....I am so nervous....(chat aler)....
7/27/00 6:57 PM
Ok, call me parinoid, but I am really nervous today. I knew my daughter being on Cortef Suspension was not good, but this change makes me even more nervous. I KNOW SHE IS BETTER OFF ON THIS PILL. I am just worried about the dosage. I feel like I keep forgetting something because I no longer dose her in the afternoon. I have literally programmed myself. Three years of the same routine. I love the fact I only need to medicate in the a.m. and p.m.. Yet, I feel like she will be missing that dose. It is hard to explain. I also do not know what her REAL dosage for Cortef is since the suspension was messed up. Even though her blood came back perfect, the suspension could have been messed up to her advantage. (levels have been too high for months before) Who the hell knows. I am just so frustrated. Just when I think I have a handle on CAH. To hear that her levels were perfect last month made me sooo happy. But I knew that we still had to make a change to the pill form. I knew we could not trust it. Then I get frustrated with myself for not DEMANDING her be changed to the pill form earlier. I was trying so hard with my trust. My trust had failed me terribly when her first endocrologist almost killed her at birth by misdiagnosing her. Twenty-nine days until her blood work is done. It can't be soon enough. Bear with these stupid posts, but I feel I can talk with you guys because you have been through it. I just pray she doesn't get ill until I know her levels are ok. Her bone age was taken today. I am holding my breath. Thanks for listening to my babbling and venting. ARGH!!!!!!!!!!
Laura
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