Re: My son is on Dex, only had problems when switched to Cortef. Anyone else out there?
7/28/00 3:17 PM
Dear Carol-I do not have any experience with the Dex. I was only told it is used for older children with CAH, and I never questioned it. I don't even know the reasons why it is not commomly used for younger kids. If oversupression is the only worry, why do the doctors stay away from it? Are there other undesireable side effects? I had heard osteoporosis was more likely to occur with use at a young age. If you know anything more specific about the dex would you share it with us? To hear of someone without worries with regard to meds almost seems to good to be true! I am happy for you to have found such a wonderful doctor. I'm sorry your son went through so much turmoil while in the study. The only concern I have for your son is that do you feel your endo is addressing the height issue? Would the dex have any negative effect on his potential growth? Also, I wonder if not being a salt-waster has anything to do with better control with the meds. (I don't know if there is a difference). Anything else you could share about the dex would be welcome! I wish you continued comfort aand peace in dealing with your son's CAH. (P.S. My daughter is 4, with salt-wasting CAH and slightly ambiguous genitalia-corrected. At age 3 we had one year of consistency with meds and labwork and little concerns. Then a growth spurt and post-operative problems has thrown everything off. After 6 months of up and down we are getting back on track again.)
Pamela
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