Jennifer, I would also suggest getting in touch with the MAGIC Foundation. Kathy Kusch is the CAH contact person. She has a son (I think he is 11 years-old) with CAH. When I knew no one personally with a CAH child and needed advice, she was there. Tell her I sent you! She is very kind and knows alot about the disorder.The site is www.magicfoundation.org/ Good Luck,