Anne was diagnosed at 9 years old with CAH,non salt wasting. She started showing signs at 5 years old. She started with pubic hair and I remember rushing her to the doctors and they said, don't worry about it, it may have something to do with her adrenal glands and she may grow up and have some male tendencies. Her bone age is now 11.5 years old. My question is, if she was diagnosed at 5 when she should have been would her outcome as far as growth be more favorable? She also has osteroperosis (sp) now. She was so sick when she was five with the worst case of mono ever, in the doctors own words, and she missed most of first grade, second grade she had about seven ear infections and they wanted to put tubes in and I had her scheduled for surgery and I said no at the last minute. Thank Goodness! In second grade she was also behind because she was sickly and tired all the time. I had her at the doctors all the time, even to neuros,checked for ADD, Chronic fataigue sydrome, then going into third grade I got kicked out of the doctor's practice because I was too overbearing and always insisting there was something wrong. She got sick about a week later and I took her to a new doctor and she took one look at Anne and said I think it is CAH, and immediatley ordered tests, had her in the hospital in two weeks and she has been treated ever since with Cortef. My second daughter was tested and also has it mildly, not enough to be on meds, but has the labial fushion and she is on Premarin. It seems to work for a while and then closes back up. I keep putting it on. The endo said had it waited until puberty she would need surgery. She will do blood tests and bone age on her every six months. She also has some underarm hair. So my question is, If she was diagnosed at 5 insted of nine would her bone age be as much and the osteroperosis? I know they would have tested her sister for sure. Any input is appreciated.