I guess I've just never been sure why the genetic/DNA testing was so important. I don't mean that to sound the way it may. I just always felt that mapping it wouldn't change the fact that my son had CAH. I guess I'm with Karen about getting more information. I don't mean to sound like I'm judging because I truely am not. Everyone has their reasons for the decisions they make but there is nothing you could do other than to tell me my son was cured that would make me stop his medication. I have seen my son in crisis on two seperate occassions. We were very very fortunate that all went well and we were able to deal with it at home and not go to the hospital. However, from many post I have read here over the years I know that is often not the case. I can also tell you that I was amazed both times at how extremely fast he went into crisis. I remember asking our endo when my son was first diagnosed at 4 days old what would happen when he got older if he began to rebel and not take his meds. She advised me that he might not notice anything the first missed dose and might start to feel sick or worse the 2nd but by the third dose of the day he would be in the hospital. If it were me I don't think I could do it. But again I can't possibly know all the facts of your sons case. I will keep you in my prayers that all will go well for your son. Judy