My son is a severe salt waster and was diagnosed as such shortly after birth.He is currently in a Growth Hormone study at Cornell Weil Hospital in New York. It is being run by Dr. New. My son's bone age advanced from 4 to 9 in one year due to the liquid cortef problems. We were told that he definately lost stature. So much so that there is a question as to him reaching 5'0". We were told that this is his only real chance at recapturing some of the lost height but even that isn't a sure thing. I don't know much about it but I think the NIH is looking into the height and CAH situation, perhaps someone involved there could post. I do know that if my son doesn't reach his target height as he nears puberty, they plan to give him Lupron to stave off puberty and gain a couple more years of growth potential. I don't know exactly how I feel about that right now, but it seems like most of us have a couple of years to ponder this and hope that something better comes our way. It is an option to think about anyway. Good luck to you all.