Re: Mom seeking support
8/16/00 3:51 PM
Lisa, Welcome to this board. I have a 3 year old daughter that is a salt waster. How do I deal with the ups and downs? I come here....ALOT. I did not find this board until this past Christmas. I do alot of praying too. This was one of my answered prayers, to find someone I could talk to about my daughter's CAH. I really felt like I was in my own world. I have a wonderful family and a friend that is like a sister to me. It was nice, but they just could not relate. Then I found this board and the angels that participate on it. I TRULY found my peace here. Whether it be asking a question about dosages to just talking about my feelings dealing with CAH. I also tell myself when I am really down, that it could be worse. I have a child with a TREATABLE disease/disorder. I take my daughter to a children's hospital and see it all. Ironically the time my daughter was born there was another baby in the NICU next to her room. He was a perfect baby born with a disorder that had no brain function and never would. He was to only last a few days. As I walked the halls with my own infant I realized that I was in fact one of the lucky ones. But don't kid yourself. I have plenty of times that you will see and if you read the archives that I have went through some, "Why should any child have to endure this...." I believe it is a natural thing that we all go through. After all, these are our children and we want nothing but the best for them. The first year is the hardest with or without the added task of CAH. You are sleep deprieved, which I know from experience can play with your mind. It seems to be just crazy. But now you have made a step in the right direction, you found this boad. It does get better with time. Feel free to ask ANY question. Try to find time to read the archives. They hold more information then any endocrologist or medical books can offer. The information you find here is from everyday living with CAH. That, you cannot find in a book. Good luck and God be with you.
Laura
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