Sad and Scared
8/26/00 9:48 PM
I know that I have been through enough with my child by now to make me be strong and tough, but I can't help but feel terribly sad and scared that my son starts Kindergarten on Monday. I quit my job during the liquid cortef problem so that I could work with him and keep him close to me. Then when I found out what caused the problems I was afraid to let anyone else watch after him. You might say that my trust was shot to heck after that. I got to know his nurse last year when my daughter started school and she was wonderful, even calling me to let me know to look out for things that might be coming around. She couldn't be better, but I just can't seem to get past this trust thing. I have been having night mares at night - when I do sleep and they are always about the same type of thing. Not getting somewhere on time. I didn't feel this way when my daughter started kindergarten last year, so I know it's not just a seperation anxiety thing. I have covered all the bases with the cell phones, pagers, beepers, instruction list, hospital info, extra meds and solu cortef. Last night he woke up screaming that his hand was in pain and his bones were hurting him. I had to massage them until he fell back to sleep. I'm beginning to wonder if his meds are off again, or if his Growth Hormone is causing this pain. This isn't the first time he's woken up with this type of pain lately. His mood has changed a bit lately also and his appetite seems to be lessening. He isn't due for his next blood test for another two weeks, but I may call if this continues and tell them I would like to move it up. I am almost paralized with fear. I am afraid of what I might find out this time!!! Has anyone else gone through anything like this or having the same kinds of feelings about sending your CAH child off to Kindergarten? I'm not usually a whimp about these things, but I can't seem to snap out of it and my husband is traveling all next week. HELP!!
LynnT
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