My 12 yr old daughter was diagnosed when she was 3. The signs were there from birth (i.e. enlarged clitoris), but the pediatrician insisted that there was a wide range of "normal" and she was one extreme. Thank goodness a different doctor finally listened to our concerns and sent us to an endo. Luckily for us, she never experienced a crisis before she was diagnosed. Now, as far as the florinef - they are not salt tablets. My understanding is they work the way aldosterone does as far as retaining proper a level of salt in your body. My daughter was diagnosed as a non-saltwaster. She was put on florinef at a time when we were having a difficult time controlling her bone-age. Combined with the cortef she was taking at the time (this was years before the recent suspension problem), we were able to get better control and actually slightly lower her cortef dose. She still takes the florinef along with her hydrocortone now and we continue to get good results. About being diagnosed as a non-saltwaster, I believe she is probably a VERY MILD salt waster. When it is very hot or when she engages in strenuous physical activity, she perspires much more than what I would consider normal. She also begins to feel very bad. At those times we would give her extra hydrocortisone as well as something salty and something to drink (usually Gatorade). Having observed this for some time, we now are proactive and give the extra hydrocortisone BEFORE those activities when we know about them in advance. The endo told us this was not necessary and to just give a salty snack and liquids before the activity. It is amazing the difference when we do it our way. Although I trust our endo immensely, I think sometimes you have to go with what you know works best.