The results are in from the first blood draw since switch to Cortef pill...
9/1/00 4:19 PM
Well, we are undersurpressed, and discouraged. Her OHP levels came back at a number of 6760. A little high wouldn't ya say? I know I shouldn't be discouraged because I did expect some change. After all we did go from giving my daughter almost 13 mgs. a day to 5mg a day. I have an appointment with her endocrologist next Thursday. I will have a LONG list of questions for him. We have upped her to 7.5 mgs a day now. We are back to the three times a day dosing much to my dismay. Dosing her twice a day took away the mid-day reminder that she had this crummy disease/disorder. Yet on the other end, I feel a little better to have the meds in her all day. I never did find my answer to why it was ok to give the pill form only twice a day. Another question to be answered next week. Although, she did just fine physically and mentally with the twice a day dosage. Argh. (bang, bang, bang) (sound of my head banging against desk) Thank God literally, for EMULA cream. I have a feeling we are going to be taking stock in that stuff. I will update all of you with the answers to my list of questions I plan to ask her endo next Thurs. Then I will update you on the next blood draw (in 30 days) I am sorry for sounding discouraged. It rips me after finally getting perfect OHP levels from last endo visit to getting these high levels today. I am sure I would be taking this much better if I did not have so many outside worries dragging on me. Chin up. Onward and upward to the next blood draw. Anyone else with results yet?
Laura
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks