This is a minefield to be carefully negotiated because few cases are the same given a genetic bell curve. My CAH son also has cranisynostosis and phyffers syndrome and we have had to go through this debate for something far more visual. You have to look long term if possible and way up what is known and what may be assumed by surgeons or even guessed. Surgical procedures will only get better and the advances in cosmeic surgery over the last 8 years have been amazing in the crano-facial area. I see no reason why this would not be the same for vaginoplasty. The surgeon is the key person and it is vital to get someone who has proven success and you can verify this. Do not take anything on face value because it is easy to get burned, we did. The lead surgeon let his student do my sons second operation and it was a disaster. The operation lasted four hours and complications in IC meant that he had to have another two hour operation. Unless someone is on the extreme end of the genetic bell curve I am inclined to think surgeons can use kids to further their own experience if it is cosmetic and not medically necessary. I have brought my son up and I have made it my mission to make sure he has a great sense of humour. He can laugh at himself and because I have teased him in a none vindictive way, anything nasty at school shoots right over him. He is also happy to explain his problems to anyone who asks and is not embarrassed. I hope this angle of thought helps a little when those cogs in your head are spinning....I know how it feels but this post should slow them down a bit. Good luck Shaun P.