I have a son with salt-wasting CAH.  When my son was born our state did not screen for CAH.  I am very happy to say that beginning next year New York State has added CAH to it's newborn screening panel!!

As to your survey:

1. Male
2. Between 7 and 28 days old.  CAH was one of the many possible diagnosis at the time of my sons admittance into the ER.  However, treatment for CAH began immeadiately.  We received bits and pieces of his test results for Endocrine Labs in CA throughout his 14 days in the hospital.  Final confirmation was received at day 28.
3. The signs which made my sons doctors (Ped. Endocrinologist, Pediatric Critical Care Specialists., Cardiologists,  Kidney Specialists, Neurologist and Ped. Metobolics) suspect CAH was a critically high potassium, low sodium - severe deyhdradation, extremely lethargic.  
4. It was our worst fear coming true having our son in the hospital critically ill and NO answer as to why, just many doctors with many guesses.  There were so many doctors poking and performing evasive tests on this little just under 6 lb. helpless baby. The worst part was throughout this all they still did not know what was wrong with him.  They were treating for various conditions, but not one doctor could give us a definate answer as to what was wrong with our newborn son.  If we had known at day 10 that it was CAH we would had been estatic!!!  If he had been screened for CAH it would had eliminated the mental pain that we endured, but more importantly the MENTAL and PHYSICAL PAIN that my son endured.

Some final thoughts:

Although we were not given a confirmed diagonsis of CAH until day 28, we are very thankful that we were in a hospital that suspected CAH from the time of my son's admittance to the hospital.  I accredit that with living in a suburban area with an excellent hospital.  New York like many states, is a large state with very rural areas.  CAH is still considered a rare condition and I do not know if my son would have survived if we lived in a rural area.  However, if CAH is on the screening panel that problem would be eliminated.

Another point worth mentioning is the bill for my son's two week stay in the hospital.  His bill was over $30,000.00 just for the hosptial, doctors bill was separate.  Think of the amount of money that would have been saved if he only stayed for three days instead of fourteen.  

Most importantly is that screening for CAH will save lives.  That alone should cause CAH to be added to your screening panel.

I hope this is of help and look forward to hearing that CAH has been added to the Virginia Newborn Screening Panel!