You have both given me inspiration to keep looking for a solution.  I haven't even really spoken to my regular pediatrician about other possible problems non-CAH related.  However she does receive all notes from my endo.  Sorry to make you describe all that Kare!  My e-mail was not working.  I have heard of pinworms, so now I will look for them tonight.  But during recent tests, a stool sample was taken, so I'm hoping that they would have been detected.  And I printed your page Roberta, and I continue to welcome any and all ideas!