I feel for your son. My daughter is only 4, but someday she may want to know other kids who have CAH. Do you belong to the Magic Foundation? You may call 800-3Magic3. Magic provides support to thousands of families who have children with many different growth/hormone related disorders. CAH is just one of the 10 divisions. There is a kids newsletter and pen pal program. There is also a yearly convention, which would provide an opportunity for your son to meet other kids with CAH. Iv'e never been, but some who write on this board have been. Good Luck!Pamela