KayOops! I must have hit the wrong key with that last transmission!
Sharon, we are also in Virginia. We live in Chesterfield (Richmond area). My 12 yr old daughter also feels like the only one in the world with CAH. She has non salt wasting CAH. She was diagnosed at 3, but should have been at birth because signs were visible - but that's another whole story. Anyway, where do you live in VA? If you ever want to talk, e-mail me at mzgrappo@rmc.com. I'll be happy to share all that I know about this. And, tell your son he is not alone.