Re: Re: Re: Prenatal diagnosis of CAH
11/11/00 7:36 AM

Becki, for the most of us, CAH was never heard of until our first CAH child was born.  I would like to assure you that if your child does have CAH she will be fine.  CAH is a very treatable condition.  When I began to read this board my daughter was 8 yrs old (now 9)  I got scared at some of the things I read.  I can't imagin reading some of these things still being pregnant with my child.  I do not want you to be afraid of things you might read.  The first priority you should have is to be informed and have a good relationship with your childs endocrinologist.  You must be able to question your endo and feel confidant with their treatment of your child.  You must do everything as instructed, you must make your appointments and keep them.  My endo says my daughters CAH is so well managed because we are a team.  I follow his instructions and keep him informed.  I see him every3 mo.  His file on my daughter is 3 inches thick and she has never had an adrenal crisis. 

This board is an excellent source of information when you need it. Post questions - they are answered with experience and knowledge.  But be cautious about some of the things you hear, not all cases of CAH are the same and your child may not ever have some of the problems others have - and there might be different problems.  Thank God that you will not have to deal with the problems the liquid Cortef that others on thsi board had to deal with.  Your child will be a normal part of your bunch - only she will have to take medication!

 

 

 

 

 

 

karen
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