LisaHello Becki,
My situation was a little different than yours will be because we did not know ahead of time that our daughter had CAH. She was born with ambiguous genitalia. So, we had to wait 3 days before they could tell us that she had CAH. She was only in my room the day I had her for about 2 hours, then she had to stay in the nursery. I felt like I didn't even have a baby. I could go to the nursery whenever I wanted to see her but it was not the same. They had her hooked up to a heart monitior, that is why she had to stay in the nursery. She was never in Neo-Natal care. She was in the hospital for 1 week, which was hard because I had to go home without her. ( I went home in 2 days) But we were always at the hospital. She is 4 months old right now and is doing great! She will be having surgery in January to correct her enlarged clitoris. We see the surgeon next month to finalize everything. I can't wait until the surgery is over, I know it is going to be a ruff day, but then it will be over for now. I hope I helped you with some of your questions. Congratulations and good luck!!!