You are fortunate that you know of CAH as a most likely possibility before the birth of your daughter. With the birth of my duaghter 7 months ago, we had no idea even what CAH was or had any reason to suspect that something would be wrong with our baby. She was born in the morning and we were told about her ambiguous genitalia soon after. The pediatrician had heard of CAH so we were sent to a city with a good Children's Hospital the day after she was born. We live 400 miles away and it was a 10 hour drive with a day old baby. we got to children's at 11:00 at night and checked her in. We stayed with her in her own room, with cots to sleep on. Scores of doctors came in. We met with the geneticist, urologist, endocrinologist and others I don't even remember. They took blood, vital stats every couple of hours, and then began a whole battery of tests. They injected dye into her and then x-rayed hr to see what her internal parts looked like. They did an ultrasound. They determined she had a vagina, uterus, cervix, and ovaries. This news made us ecstatic! To me she looked like a girl so I was happy to hear her inside was confirming this. The test that took the longest was to see if she was xx or xy. I remember the endo saying that even if she was xy she would have to be raised as a girl because there was no way they could make what she has into a penis. So we were thrilled to hear she is xx! Finally, the endo came in and explaied with drawings what CAH is. A big ahhhhh was felt to know that this is something with a name and is treatable and genetic. She was only in Children's for 2 nights!! Then we stayed at my sister's for a while as we had another appointment in a few days for a follow up blood sample and an appt. with the urologist. The urologist explained the surgery procedure that he wanted to perform on my daughter to make her appear normal. At first, we gladly accepted what he had to say because it is what we wanted to hear. But the statement he said, "some loss of sensation" didn't sit well with me and i began doing lots of research. At the same time, my daughter was now on proper meds to suppress her hormones and her genitalia stopped being so swollen and settled down. It is a personal decision, but I'd do a lot of research first. We decided to have only the surgery to open her labia done. It is her body and if she's not comfortable with it then it can be her decision to have the clitoris messed with. Too many unknowns. The doctors can't know even if sensation will be intact and ther has been no research done on these women. To the doctors success is based on looks only. There is a wide range of normal in genitalia. We've had other reassurances from pediatricians, obgyn's of this wide range and reassurances that leaving her alone is best for her. I wish you many blessings on the birth of your child. They are true mircles, bundles of joy!! I'm sure the angels wil be watching and guiding your delivery!! Julia