Our story is a little different...we have a son with salt-wasting CAH.  I do have to echo all the words from everyone else when they say you are very lucky to have this possible diagnosis before your little girl is born.  Like so many first time parents with a CAH child, we had never heard of this condition and were absolutely floored when we received a phone call from an endo. when our son was 6 days old basically saying she needed to see our child immediately.

The time in the hospital after he was born was hard enough...our son was also born with club feet affecting both feet and a mild case of hypospadias.  But those conditions soon became secondary.  Our son was diagnosed based on a newborn screening performed when he was born and after we saw the endo we had a 24 hour stay in the pediatric intermediate care unit at Hershey Medical Center in Hershey, PA.  This stay was because our son's electrolytes were out of balance and he was put on IV meds and fluids and placed on a heart monitor.  He had another short hospital stay (24 hours) at our local hospital when he was 1 month old because of the electrolyte problem.

He will be 6 months old on Monday and is doing GREAT!!!  I can honestly say that it took some time but I finally feel at peace with our situation and it is just part of our life now.  Good luck to you!