Before this message board the only way to network with question

was through MAGIC.  They have a great networking list and a

quarterly newsletter with personal stories, letter to doctors and

information about their yearly conference.  I hear the conference

is great, but as of yet haven't made it to one.  I think they are a

great organization and that it is well worth it to join.  Make sure

you request the networking list; you can see if there are other

families nearby.