Heather, It depends on a lot of variables. I have been on both sides of the fence with the growing pain experience. My daughter (non-CAH and 6 years old now) had growing pains where I would have to rub her legs and let her know that it was normal and a good thing. When she realized that her legs were getting bigger, she felt like a big girl and was able to tolerate the pain better much better. My son, on the other hand suffered through an excruciating amount of growing pain due to the liquid cortef problem. His bone age advanced from 4 1/2 years old to that of a 8 - 9 year old inside of 1 year. He would drop to the ground and scream and roll around as if he was on fire. He tried to explain to us, as best a 4 1/2 year old could, that "hot lava" was running through his body or "sharp nails" were poking him in his face and limbs. We were ready to rush him to the hospital on a number of occassions but were told that it was growing pains. I'll say, how about doubling in bone age in one year. You mentioned that your child was also on the liquid. What are his levels now. You say that he has blood work done every 6 - 8 weeks and they change meds. Is this because they are unable to get his levels stable since switching from the liquid? If that is the case, his bone age may be advancing too rapidly for his body. Just how bad is his pain level? We don't want to blame everything on CAH, but if your child says he has "boo,boo legs, and can't walk or run and play with the others then it bares looking into. My son would sit there and cry because he wanted to go play with the others but "his legs wouldn't let him". First and foremost, I would get his levels and bone age checked again. I would rather have you err on the side of caution then let your child suffer needlessly as mine had to do. He was trying to tell me he hurt and my doctors told me it was normal. I spoke very curtly to him once in the car when he began screaming about the pain. I told him what the docs had told me and that he needed to be a big boy and try to stop yelling while mommy was driving. I know realize how cruel that was. It still brings tears to my eyes when I think that my child tried so hard to communicate his pain to me and I trusted his meds and doctors over him. Never again!! Sorry, I don't know where that came from!! It is better to be safe than sorry. Yes, every child goes through some form of growing pains, but when you are dealing with a child with CAH, this can also be a sign of undersuppression. That is a life threatening thing. Believe me, I would much rather be sitting here feeling guilty about over reacting to his growing pains than feeling like I failed him as a mother. Please keep us posted as to your son's progress. Good luck.