Robertahttp://www.globaleyes.net/clients/nonney/jacob/
This web page gives a quick description of CAH = the classical salt wasting CAH that my children were born with but it is similar to what you have. I have read on some of the web pages that CAH women can have children if their CAH is controlled and there isn't a hormonal imbalance (like how you decribed no periods). So I would think that you need frequent appointments with your endo to make sure that you are be manged properly and your period return so that you are ovulating. I would recommend monthly appointments at first just to be sure. The plasma renin, 17-OHP and chem 8 blood tests are a must. Especially the 17-0HP (hormonal levels). The Science Endo Lab in California is where the 17-OHP is the best lab to have the endo send the blood. It is more accurate. Also the blood must be taken between 6 am and 8 am and with the medications (hormonal surges in the am and pm affect the test). Your baby will NOT have CAH unless your husband has the gene for CAH. I had genetic testing (DNA testing) done after my first child was born with CAH. Both my husband and I have the gene for CAH and then it was a 25% chance that our children would have CAH. But if you husband does not carry the gene for CAH then the chance is ZERO because it is a recessive gene and takes both parents with the gene. And the medications that you are taking for CAH will not affect the baby because it is a natural hormone that your body should be making anyway (the medication is a replacement drug and people without CAH make without taking the drug).Take sure you have a medical alert bracelet or necklace that says "adrenal insufficiency". You must know how to inject solu-cortef or dex in case you are injuried, fever or vomiting. I had my children at 38, 39 and 42 and I had no morning sickness (lucky or I read that older women usually do not have morning sickness). I had CVS test (like an amnio but done early and the children had no chromonal problems like Down (retardation) or anything). I took dex treatment with my second pregnancy because it was a girl. The weight gain was one big side affect for me. I took dex again with the third pregnancy for 10 or 11 weeks until I had the CVS test and it was a boy so I stopped taking it (I do not have CAH - I am just a carrier). I wish you the best!! I hope you have a baby soon.
The National Adrenla Diseases Foundation (NADF) has support groups more geared for adults with adrenal problems. The phone number is (516) 487-4992, 505 Northern Blvd, Great Neck, NY 11021, NADF@aol.com. They have internations organization and support groups in many states - Arizona, California, Ohio, Illinois, Iowa, Michigan, Missouri, New Jersey, Utah.