My son is just 2 1/2 so I am still learning at this too. When my son was an infant, I had a pretty open approach. People would ask about his med. alert bracelet and I would tell them he had an adrenal gland condition. Inevitably that led to more questions. I answered questions pretty much until they stopped being asked. My approach to life has always been pretty open, I am not one to keep secrets (even when I am trying to!). However, I have slowly been trying to change this because of some negative experiences.

First, as my son got older, I started to notice that he was listening a little too intently whenever the topic came up. I don't want him to see himself as someone who can't do something, or is lacking something. 

This is a very fine line here and I know it is a sensitve topic. I don't mean to offend anyone. I just think it is very important for him, and everyone else, to see him as a normal, healthy, growing child who happens to have a medical condition; not a child with something "wrong".

Second, I had several instances where people made very insensitive and insulting comments in the presence of my son. For example, "What is wrong with him again". And, from a mom in our playgroup "Now will he be able to play sports or is he too sick for that". Not only don't I want my son to hear this, but I also don't want people to treat him differrently just because of hte CAH.

Please don't misunderstand me on this.  I don't advocate hiding the CAH or pretending it doesn't exist. I also know that it is a matter of life and death for some people to be well informed about the need for emergency treatment etc. I just have become more conservative about who I give info to, and what info I give them.