Hi sorry for the delay in my responding to your question.  No Michelle is not my daughter.  My daughter is very private about who I discuss her condition with and she has asked me not to give her name on this board. I have asked her to read the board and sh doesn't want to yet.  So I will respect her privacy and not disclose her name.  She trys very had to be as "normal" as possible.  Sometimes I feel she could be in denial but she is very responsible about her meds and other needs so I try to talk to her as she is ready.  I hope your daughters problems are helped by the urioligist and I hope she does not have to suffer many years.   Good Luck and let me know how it goes.