Hello - Wow...I'm sure glad to find all of you.  I have a 9 year old son with CAH (salt loosing).  He was diagnosed at 9 days old when he almost died.  I've only met one other person that has a child with CAH...but that was just briefly at a endo. visit.  I can't express the joy I have right now knowing that I'm connected with others.  

Just got him home from the hospital yesterday..for brief trip to hydrate after flu bug (has had about 4 of those episodes since birth).  I got the shot in him the first day..but he still wasn't holding anything down...so off to the ER we went.  As usual, the staff just seems to not truly understand the importance of what they need to do.  Can't remember where I read it this morning or who posted..but I replied...about the need to get them hydrated...that comes first..and it's like pulling teeth with these professionals to know the importance of that.  I think that person explained it like we're just a chapter in their med stidues...but to us it IS the most important chapter!!!!!  He's still at home with me today and will be tomorrow too with his "stress dosage" of oral meds...but last night while I was trying to de-stress myself after another chaotic hospital stay I decided to search the web for a message board for a couple of reasons...share experiences...and help others with CAH children to cope with all the experiences that we must endure.

I'm feel very fortunate today to be connected up with all of you and hope to get to know you all better.