Heather,

I am flabbergasted.  No child with CAH should not have replacement steroids.  You owe it to your daughter to get a second opinion.  Where is Texas are you?  There are a lot of people on this board that are from Texas and could give you some referrals.  What has happened when your daughter runs a fever?  Has she ever vomited?  The state of  Texas has a great website that explains CAH in condition.  They also have a "Handbook for Parents of CAH Children."  This can be printed off of the website.  Please use the links located on this board to visit that site.  I think then you will understand our concern for you and your daughter.  We are not just over reacting.  If your daughter truly has CAH, not treating her is putting her growth and development and her very life in jeopardy.