robertaSorry to post this again (especially after the death - I am so sorry) but I am still trying to find support for CAH newborn testing in Virginia. My daughter died of an adrenal crisis and like the 3 year old that die on the 13th this month is so sad and I miss Jessica so much. WHY WHY WHY??? Why didn't I get the shot - it would have safed her life and to take her to the ER for IVs? The endo on call told me to double the cortef and stop calling. I was so stupid!! I should have given the solu-cortef. Vomiting, loose bowels, and fever is an emergency for a CAH. DOCTORS SHOULD HAVE TOLD ME .... I SHOULD HAVE KNOWN.... I lost Jessica on 1 Sept 1997.
Maybe CAH newborn testing will increase awareness of CAH. Please help me!! I need to know if anyone lives in Virginia and will help (Richmond area - especially).