Congrats. to you! Babies are so wonderful aren't they? I wanted to let you know I think so highly of you. You are such a brave individual. I only have one problem, you are way too hard on yourself for what happened to your daughter. It was not your fault. Please for Jessica, don't let yourself be engulfed with such guilt. I can hear it in all your posts. It was the doctors fault. I get furious at these doctors that do not know about the dangers of CAH when a child gets sick. Roberta, YOU are the one that made me get Solu-Cortef. YOU are the one that showed me the importance of monitoring my childs fevers. It is through your courage that you have helped so many other lives. The loss of a child I am sure is enough to contend with. Putting a layer of guilt just makes it harder. 

I love my daughter's endo. but he never pushed me to learn the injection, nor the importance of the injection until I mentioned I learned how to use it. Come on endocrologists out there, Solu-Cortef injection should be the first thing taught along with the regular meds. Why was this not showed to me when my daughter was first diagnosed!? I was given the option and said no that I was too scared. He backed off then. Of course in the beggining I never thought I could administer her daily drugs and did it. If I knew it was a matter of life and death I think I would have opted to learn to give the shot. What if I never found this board? This is truly a matter of life and death. I AM ASKING ALL FELLOW BOARD PARTICIPANTS PLEASE, at your next endocrologist visit express the need to educate all new parents of CAH children the importance of Solu-Cortef right along side with the daily meds training. Some of you may not have to do it because you already were taught this at diagnosis. It is worth reminding our endos. again if they already do it, that it is of great importance. Every patient should be given a plan of what to do if their child gets a fever, vomits, diarreah, or broken bone. We should not have to come up with our own here on the message board. (of course thank GOD someone did come up with one) What I am saying is that this should have been given to us with our child's release papers! I know that the next meeting with my endocrologist I am making him a mandatory list of what should be given to any new CAH patient, salt wasting or not. I am going to encourage him to pass along this list to his fellow endocrologists. This just makes me feel even more blessed that we have this message board to come to. Thank you Roberta and to all that helps our children live safer healthier lives. God bless.