Geri, I can understand your fears. And not having any children older than 26-months, I can only guess as what is going to happen as my daughter gets older. Hopefully, by the time she is in high school, she will be pretty much in control of her meds. I know if she is still on cortef, which needs to be given every 8 hours, I will still need to be involved to make sure the late night and/or the early morning doses are given. Hopefully, by the time she is in high school, she will know the fever, vomiting, diareha needs and for the most part will be able to take the extra meds or communicate that an injection is needed. Even though my daughter is only 26-months, I don't believe I am complete control of her health. Yes, I make sure she gets her cortef on time and that she gets her flu shot, etc. But if she is sick and not exhibiting any symptoms, I won't know to help her unless she is able to communicate with me. Even before she is in elementary school, I won't be aware of what happens in the bathroom (e.g. vomitting or diareha) unless she tells me. In the past there have been several young ladies who were in high school and college who partisipated on this board. From their various posts, I got the impression that they were raised with CAH being a part of their lives, and they just continued on with what had become a life-long habit. There are lots of scary things that we, as parents, must allow our children to make decisions about (e.g. drinking and driving), CAH is just another one.JanetD