I can tell you from my experience that my daughter who is a senior in high school, and 17 years old that you are all on the right track think about the future.  My daughter started taking her own meds around 10 to 11 years old as I recall, allways with me asking the question Did you take your meds? and yes it soon became habit.  She does know her body well and knows when she is getting sick and listens to it.  One thing I do emplore to all parents is to interduce your children to the need for excerising, even at the young age of 4 when my daughter started swimming.  There is something about the lifestyle of swimmers that I beleive they learn healthy habits and good workout ethics which I believe helps with the CAH, swimming is a year round sport, so you allways have it.  She has participated in every other athletic sport, even football, thank goodness it was only one season in 4th grade, she has three older brothers.  Yes I do worry about adulthood and all the what ifs, and letting her go off to sporting events thousands of miles away, I am a mess!!! My daughter just learned how to give herself an solu cortef injection so I am glad about that.  I think our kids sence how serious their illnesses can be at a young age just by our behavior when caring for them, even my sons who are young men now show concern and consideration by calling her all the time just to say Hi and how ya doin?  I do hope for the younger children there will be new research that will make this condition better with new treatments available.