Re: Re: re:When our children become adults and we aren't in control of their meds.
1/24/01 9:56 PM
I think the hardest time of caring for a child with CAH is when they are young. They can't communicate to us how they are feeling so we always have to watch over them and stay one step ahead of the game. I would think (and hope) that as they got older they would have a more responsible outlook than a child who didn't have to deal with a medical disorder of any kind. I have read many articles that state that children who have "special medical needs" AND their siblings tend to grow up with a greater sense of responsibility. They also seem to be more tolerant of differences in others and many of them end up working in a medical or science profession or go into some kind of care giving occupation. In other words, they not only learn to care for themselves, but they also learn to care for others. I have found my son AND daughter (5 & 6 years old) to be very mature for their ages and my family and friends have commented on that as well. From the sound of the posts, many of you find the same advanced level in your children. I think we can relax about the future for now and focus on teaching them good health habits and a healthy respect for life. Thank you all for sharing your thoughts and experiences with us especially Stefanie and Sheila. It always comforts us more to hear some of the success stories of adults with CAH. Your parents should be very proud of the responsible people you have become. I wish you continued health and happiness. Thanks again.
LynnT
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