Been a long time since I posed a message...Very proud of you!!!! You are his advocate and that is what it takes to hope for the difference. 

We are still struggling with Reil's CAh our last blood test ended up in the ER the biggest thing I've found with her, the first sign of trouble is a decrease in her temp and blood pressure... So far I have to demand  attention because the lab hasn't figured out it is not normal for a five year old to fall asleep during draws...

Again, very proud of you!!! k