Laura -

We have an 8 1/2 month old son with salt-wasting CAH.  We live in Pennsylvania and the hospital where I delivered performed the supplemental screening program tests on my son at the same time the required tests were done (PKU).  In answer to your questions:

We received a call when my son was 6 days old from the pediatric endocrinologist that he had received an abnormal result on one of his screening tests.  She asked to see him that day and drew blood to run a test to confirm her diagnosis.  As I understand it, the Health Departments involvement was with the original screening test.  When they got a result that there was a child with a potential problem, they contacted our pediatrician who then contacted the pediatric endocrinologist.  We were blessed that all of the "controls" that you would hope would be in place to diagnosis and then start treating a child with a life threatening condition were working at the time our son was born.

Just as an aside...the State of Pennsylvania has recently (as of October 1, 2000) begun mandatorily testing all newborns for 3 additional conditions aside from the PKU tests already required.  CAH is one of those conditions.

I hope this helps!  If you need any other information, please feel free to e-mail me.