RDOI have a 6-year old son with salt-wasting CAH. At that time it was not part of the routine newborn screening in PA, but the hospital at which I delivered tested as part of a supplemental newborn screening program (and I thank God for that daily!). I am not sure exactly when they did the testing, but he was born on a Tues. evening and we went home Thurs. AM. I assume it was at the same time they did the mandatory screenings.
We did not know at that point he had any problem. They thought he looked a little jaundiced, but tested for that again and sent us home after the results were back ok. After we were home, he was sleeping a lot and didn't seem to eat much (I was attempting to breast-feed). I called the pediatrician to make our first appointment and expressed some concern, but he said as long as he still had wet diapers he was getting enough nourishment. When he was 7 days old we got a call from the pediatrician asking us to come into to his office immediately. He said there were some test results that didn't look right. While we were in his office he made an appointment for the next AM with the ped endocrinologist.
I will never forget that trip the next AM. Besides the tension we felt not knowing what was to happen, I remember look of that poor little baby in the car seat beside me. His condition had changed much overnight. He had been losing weight (although we didn't realize that until we were at the ped office the prior day), and was now looking lethargic and his color was off. We spent a few grueling hours in the ped endocrinologist's office. He was somewhat confused because the test results appeared to be only slightly off, but he sensed something was wrong just looking at my son. The results had been reported in a different measure than both the ped and ped endo were used to. After a couple phone calls the endo discovered this. As it turns out, the results were way off normal, not just slightly off. He admitted us immediately and started IV and meds, before the tests were re-run and diagnosis confirmed. We stayed three days, but the results were confirmed on the evening of the second day (he was 9 days old at this point).
I don't know of any false-positives. Maybe the Endocrinologist's professional group might have some info on this. I am not aware that the Health Department was involved in our case. I would guess that there are no stats available on deaths, because if undiagnosed most of them would be attributed to SIDS, failure to thrive, etc., etc., etc.
Good luck. I was delighted to hear from another post on this thread that CAH is now part of the routine screening in PA. I hope you are successful with your efforts in OH.