Hi Steve-- I noticed you said that you were going to have the clitoral reduction done on your daughter, but the surgeon decided it wasn't necessary--I have heard others say this before, and I am not sure I understand where this judgement by the surgeon comes from?  My daughter is having a vaginoplasty done this coming Friday, and a clitoral reduction was recommended as well (though we are not planning to do it at this time).  The clitoral reduction was recommended for my daughter after an exploratory surgery where they actually measured the size of her clitoris and looked inside of her to see exactly what to plan for with this surgery coming up (ie--how far up her tubes were connected, etc.) 

I thought at first all babies had this exploratory surgery previous to the vaginoplasty, but I know Lisa's baby did not, so I guess I was wrong.  So, am I right to guess that babies who do not have this exploratory surgery are the ones more likely to have the surgeon decide during surgery that a clitoral reduction is not necessary?  (Hope you understand what I am asking).  I would assume, as in my daughter's case, if they have actually measured it and everything, they would have no question as to whether or not they think it needs to be done?  Just curious.....

And to you Lisa, do keep on top of the med dosage.  Make sure to remind every nurse you see while the baby is in surgery until you hear confirmation that she had the meds.  Also, when she comes out of surgery, make sure to find out when the last dose was given.  My endo has said again and again that I am my babies doctor next to her--most doctors do not know as much about CAH as they should and you end up knowing more.  Fortunately my baby is going to a "learning" hospital, where the doctors actually keep close tabs on each other and our urologist performing the surgery is quite used to working with CAH babies, as well as his staff, so I don't worry as much about med dosage with them  They are very qualified and very good at working with CAH babies.  But still, asking them does not hurt if it makes me feel better, and they don't care--they are used to "worry-wart" moms!  LOL 

When my daughter had her exploratory sugery, they told me she would get one dose of meds by them, so as her time for the second dose approached, I got antsy to see her out of the recovery room.  When she came to me, I just started preparing her meds and the anethesilogist (sp?) popped his head in to see how she was and told me then he ended up giving her the second dose right before she came in to me and took out the IV.  I am glad he said something or she would have been quadrupled or triple  dosed, so now I know to ask before I do anything and keep in close contact asking lots of questions this time during the whole surgery.  I am also going to bring a journal to write in during the surgery--it is so theraputic to get those thoughts and feelings on to paper!  To you, your daughter, and your family: you will be in my thoughts and prayers all day Monday and all week.  I will be anxiously awaiting your email to hear how things go.  I wish you all the best!

Jenny