Hi Laura! Yes I read that post too and it was the best thing I've read yet. But I don't want to get my hopes up too soon. I did that once before on this board. When I read a couple cah women who said they still had their sensation, I felt relieved. They had their surgeries before my daughter so I believed my daughter's outcome was more likely to be positive having been done more recent. As I found out from my daughter herself, it wasn't. I asked my daughter if she believed they should do surgery and she said "not if it means you lose sensation". I was also told by a pediatric urologist a couple years before that "she should have sensation". I remember how relieved I felt then. I remember wanting to just feel happy. I felt bad for the other women who had bad surgeries but my daughter was one of the successful ones. But as it turns out, the women were right and the doctors were wrong. My daughter was severly virilized at birth. It was girl with cah or boy with hypospadias by the midwife who delivered her. Then the pediatrition said he believed it was a cah girl but not sure. Then two days later at a children's hospital it was cah girl. My daughter's clitoral reduction was done before I took her home from the hospital. I was told about the cortef, and after a couple days it was determined that she would also need the florinef (salt waster) I had to give my husband an injection to show that I knew how if I needed to give her one. This endocrinologist had been studying cah for 20 years and I was told he was an expert and that people came from other parts of the state to bring their children to him. The surgery was just part of the treatment to me. There was not really much discussion. I was 19 and trusted all of the doctors. I believed this was extremely rare. I raised my daughter as a normal girl. I was told that she would grow up just like any other girl.Develope normally,have periods,and be able to have children. Most of that is true. I was NOT told about the loss of sensation. I was NOT told that this was experimental. And I know that I never would have allowed the surgery if I had found out that only a few years earlier, their treatment was to just remove the clitoris. I was led to believe that the surgery was going to make her genitals appear as a normal females. It didn't. Maybe it looks different for some of the less virilized women. It is not so noticeable when they are young. So my daughter has to be happy with hers the way they look now anyway so what was the point of the surgery? This is why I am no longer for the surgery. I wish I could turn the clock back. I don't know why some of them have been left with sensation and some without. But now that it has happened to my child I feel I should warn others. Listen to ALL of these women. I'm just a parent like all of you. I have had people tell me not to feel guilty because I didn't know but it is hard not to when your teenage daughter tells you this. What do I tell her now? I don't have an answer for her. I am hoping that she will decided to meet up with others who can relate to her. Well, that's enough for this post! I just hope people can understand where I am coming from. I hope people will come together and try to understand each other. I have learned more in the last few years about this condition than I had my daughter's whole life before that and I am still learning. :)