Re: Re: To Joan
2/10/01 8:55 PM
I am a parent of a 7-month old daughter with servere salt-wasting CAH.  My daughter just had her surgery done on Monday, and it looks beautiful.  She now looks like the little girl that she is suppose to look like. I did the surgery for my daughter, I didn't want her to ever think, "I am a little girl, but I have a penis like my brother."  When I delivered my daughter the doctors could not tell me whether I had a boy or a girl, obviously that meant that my daughter was born with an enlarged clitoris that looked like a penis.  We had to wait for 3 days to find out whether she was a boy or a girl.  There was no way, I was going to have my little girl grow up thinking she had a penis, that is why we did the surgery.  It is a hard enough decision to make as a parent, I respect what you have to say about the surgeries, but you should not give out such negative feedback to a new parent with a daughter with servere CAH who is deciding whether or not to have the surgery done. It just makes the decision that much harder to make. Medicine has come along way in the past 30 years.  I am sorry that you had a bad experience with your surgery, but that doesn't mean that the rest of us will.
Lisa
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