"I just want to be normal" . . .
2/11/01 2:44 PM

We are having some troubles with our almost 5 year ssw CAH daughter.  We have been through many illnesses and hospitalizations between her and her 3 year old ssw CAH sister since November.  Things have seemed nonstop for us.  She has started having alot of anxiety and recently started pulling out chunks of her hair.  She made a comment to her grammy the other day that she just wanted to be normal.  We are trying to arrange to have her talk to a child therapist but I would like to know if any one has any words of wisdom.  Some days it's hard enough just to manage the medical part of CAH, the psychological effects have really snuck up on us.  She seemed to be doing fine, would talk about what was on her mind and seemed well adjusted.  My husband and I are just heart broken to see her so angry.  Thanks for your input.

Tonia

Tonia
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