Re: "I just want to be normal" . . .
2/11/01 7:28 PM

Wow does this sound like my house!

Yes my kids 9 yrs old , twins with sw cah, feel the same way, but the only pearls of wisdom that I have to  pass on is that, yes they do have this condition, BUT we treat them as normal kids. Sometimes their life has a few blood test, a few more Dr's appt's and they have to start to be aware of how they feel when they are getting sick, and tell us about that( we are just getting that message to the boys, yesterday afternoon Andrew came down and said Morgan is sleeping is that OK? He had started a fever, and had a bad cough, so we started stress dosages)

It is very hard as a parent with 2 kids getting new bugs, every other minute! Especially when they are young like yours. But keeping the "its no big deal face" for them, helps them feel more like the other kids. I always melt down in my room, so they can't see.

Its very helpful to come to this board to de-stress, because we are all in the same boat, trying to keep it afloat! Good luck Tonia!

PS it has been a very unusual winter, the bugs flying around are wicked,(thats a Maine saying) and very strong it seems I have been dealing with stress dosages and illnesses every other week. Take care KB

Kathryn
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks