AimeeDear Goldie,
This is not hard to talk about or I would of never wrote my letters.
I put in my E- mail to you that I am not a lesbian because it seems like there are a lot more lesbians that speak up about CAH than not. I wanted you to know that I am heterosexual even with being so virilized. Lesbians are cool, I'm just not one. I do not relate or identify myself as intersexual but if others feel that they are intersexed , I can respect their feelings.
I'm mad at having the CAH but happy to be alive thanks to research of doctors. It was the birth defect that was the cause of the surgeries. I also wrote more in depth in my second post to your response that I liked doctors and my parents did the best that they could. I'm mad at having to explain this condition to every man that I meet. They can always leave me for someone that does not have CAH. I wish that I did not have CAH but there are hundreds of other birth defects that I could of gotten.
With respect to Deb C....... she had surgery, kept her enlarged clitoris. Then at age 23 she had a clitoral recession. I had a clitorectomy and labia opening done in 1975. In 1991, I had surgery done so I could have sexual relations. My clitoris was completely removed. Deb's was not. That could explain why she has sensation.
In all my posts, I've only talked about my own personal experience. Each case of CAH is very different. Surgery is necessary for some of us and others it is not. Some of us can wait a while for surgery and others can't.
It would of been cruel for me not to have the surgery. I have female chromosomes, no male anything. My clitoris was the size of my adult pinky and I peed out of it. Is that something a little girl should have ? I do not think so.
To know if today's surgery has changed you will have to look at postings 20 years from now. I have looked at a lot of medical research on CAH. I remember reading something that was written about cutting around the nerves of the clitoris. It was on the internet.
Today doctors do not perform clitorectomies except in extreme cases. They have the drug dex that helps some pregnant women reduce their chances of giving birth to a child with gentical abnrmalites. Doctors know a little more about CAH surgeries today. It is reflected in the posts of many of these super parents.
Take Care,
Aimee