I just wrote a very long message and when I submitted it, it disappeared and I don't know why.  So, I'll try again.  I did not see the show, but I did view the website.  Intersex is not the word that bothers me, but rather the word mutilate.  Intersex is defined as "an individual displaying sexual characteristics intermediate between male and female."  Mutilate is described as "to deprive a person or animal of a limb or other essential part, or to injure, disfigure, or make imperfect by removing or irreparably damaging parts."  Our endo never described our daughter as being intersexed.  At birth, she was pronounced a girl.  Only later, when the genital swelling did not disappear, and our baby grew too rapidly, was CAH suspected.  At 6 weeks she was diagnosed as a mild saltwaster with ambiguous genitalia.  However, we were told that genetically we had a girl with all her internal organs, but with masculinized genitals due to the excess androgens.  After many tests, we were told that the vagina was not properly formed and that she could not have vaginal intercourse or deliver a baby vaginally, without surgery.  Also, by the age of two, her clitoris had doubled in size and began looking more like a phallus.  (But she still looked like a girl).  But if my daughter is considered to be intersexed because she had surgery to make her genitals "normal", then so be it.  But I know deep in my heart, that my daughter was not mutilated, nor would I subject her to surgery if I thought it was mutilation.  I believe it is the opposite case-she was given the opportunity to have vaginal intercourse and delivery a baby vaginally (if she should choose), and yes because I the parent deemed it necessary and important!  As parents, we make decisions all the time for our children, whether it's about genital surgery or saying no to something our child wants.  I make decisions based on what I know to be in the best interest of my daughter.  She had a clitoral recession and vaginoplasty at 2 years old.  I believe she has sensation, and the clitoris is no longer a "phallus" that keeps growing.  We know some vaginal reconstruction may need to be done in the future, but it will be a shorter procedure than the first time, if necessary.  The teen years are difficult enough without adding the burden of her making her own decision for surgery or not, and to have to deal with a "phallus", not for what other people think but for the discomfort and confusion of it.  (yes, our surgeon performed surgery on an 11 year old with a 6" phallus that was extremely uncomfortable).  I did not want this for my daughter.  And I truly believe that God has given skills and talents to the people who help us and it is our choice to make and utilize those skills.  The point is, it is not just semantics, there is so much more to it than that.  And I do not feel that these types of websites should not exist, rather the opposite.  We need access to information that covers both sides of the situation.  It is important that we as parents gather the information, gain second opinions, and make a responsible informed decision for our child.  But for me, this website was particularly disturbing, and my heart goes out to all the women who have felt mutilated.  If I had seen this website alone, the decision for surgery would have been almost impossible to make.   I applaud the parents who have looked at all the information and made their decision for or against surgery.  I do however, have a problem being told that I have mutilated my daughter.  This I will not accept.  I vote for making informed decisions and using a surgeon who is highly skilled, experienced and who cares about the issues involving genital surgery, and who does not "push" parents one way or the other.  That was our situation and I feel we made the right decision.  (And our daughter, at age 4, knows she had surgery, but does not fully remember it.  We dicuss it with her as she needs and keep her informed of her CAH, at a level she understands.)  Thanks for "listening".