Please Goldie, don't leave us. I have never met a more compassionate, understanding and empathetic individual in my life. You have the ability to have an opinion, listen to the experiences of others and without hesitation announce that you have changed your mind in light of the new information available to you. You are open to learning new things from those who have actually experienced them and not just those who talk about them. I remember when I told a story about how when I asked my son what was the worst part of his clinic appointments and I was expecting him to say "the shot or the blood draw". Out of his little 4 year old mouth, and without hesitation, he said "when they pull down my pants and touch my penis". I remember your comment like it was yesterday and it found a place in my heart just like you did. You said "I have been humbled to realize that it is not just the girls who have to go through the invasion of privacy. I never even thought about that aspect for the boys." Forgive me Goldie if I am off a little, but you can all get the jist of it. You went on to appologize for it. It is clear to me that you love your daughter above all else and had hoped to find an answer for her on this board. Everything takes time. It was only 50+/- years ago that they discovered this gene and as far as DNA goes, that is still very young. This is really the first generation of survivors of this disorder and we can only help if we stay together and search for an answer together and God help us, a cure. Let's not be torn apart by a word that we might not agree fits the CAH catagory exactly. I really liked a comment that someone had said early (sorry, I don't remember who). It went something like - listen to all the information and opinions that this board has to offer, take what you need and identify with and throw the rest away (although, I would file the rest in the back of my mind since new things are discovered every day). United we stand, divided we fall! For our children and the sake of any future children who will be born with CAH, lets stay together and find a way to find peace within this topic. We all want the best for each other and there is no better place to start. Goldie, what I am trying to say is that we need people like you to help us see all sides of this disorder. Please stick around, if not for me, for all the people who can benefit from your experiences of raising a healthy, open-minded daughter who just happens to have CAH. When I was young and sought professional help for having been molested as a child, the doctors kept putting me in a group of rape victims or had me read books about it. I was so discouraged. I thought that they didn't really understand and that I did not belong in this very tragic group. I resisted for a long time until one day, a wonderful doctor came to me and said "I know that you feel that you don't belong in this group of women because you were not violently raped, but you did have the choice of who would be allowed to touch your body taken from you. There is information here that can help to heal you and empower you if you will just let go of the semantics of the word and let the healing begin. That was the beginning of my journey. I am still traveling through life taking bits and pieces of information from different places as I see fit. Perhaps until we can find a way to discuss this subject on a less explosive level, we should put it up on the shelf with politics & religion. This subject may be something that we many never have an answer to or agree upon, but I do know that we can not afford to lose even one person with the experience such as you Goldie. Please promise me that you will stay for the sake of all the parents who are trying to raise their children in the best way that they can with a disorder that is relatively new to the medical field. We need you my friend. I need you! God bless each and every one of you.