JanetLet's all be clear that there are only several parents who seem to take issue with the term intersex used to describe CAH children. Most of the responses seem to indicate a tolerance for new and innovative dialog for the furthering of our understanding of this disease.
I doubt that in 1957 my parents were receptive to the label of pseudo-hermaphrodite that their new baby daughter was given either.
The kinder label of ambiguous genitalia is so ambiguous in and of itself that it provides little information. Maybe that is the attraction: for doctors, educators and parents to say something without providing too much detail. The point must be made that by the time your CAH daughters are old enough to comprehend these labels, there will be even more information and most likely new and improved labels to correspond to that knowledge. It is hardly appropriate that we continue to utilize phrases, words and labels that were coined generations ago.
While our parents may not find comfort in the term intersexual, I believe it speaks more clearly to what we feel as CAH women. All the surgeries in the world cannot change the virilization of our minds that occured at the same time our genitals were developing. Ignorance, wishful thinking, denial, and narrow definitions will not change whatever your daughters feel inside of themselves. You will love them for all of the things they are, regardless of labels. They will have the benefit of this cyber technology as they become curious; they will find their own answers regardless of what was spoon fed to them in their youth. Please try not to hamper their journey with your own predjudice... with your own dreams of what you wish for them.