http://www.caresfoundation.org/ Here is the web site for CARES. I still think if the doctor's were more educated on CAH - then there wouldn't been a need for you look at a fund raiser. I clearly see it as the doctor's fault for not monitoring the 17OHP more closer and the other hormonal levels!! Just thank god every day your child didn't die from an adrenal crisis (like many mis-managed CAH children have). I think EDUCATION and AWARENESS is the key!!