Re: VCUG test
6/14/01 9:51 AM
Beth, Sorry to have taken so long to address your questions. Hopefully I can help a little. When Olivia was in the diagnosis process, she had a VCUG (I believe - sounds the same) scheduled when she was 11 months old. They were unable to do the test because they weren't able to catheterize her - she was too small (the pee hole). At 18-months when she had a cystoscope (at this point she was diagnosed with CAH) they left the catheter in following the surgery and then did the VCUG. Both of these procedures where done on my daughter to help determine what her internal anatomy was. From an ultrasound they were able to find the uterus and the ovaries. But since she has no vaginal opening, they weren't able to determine how the plumbing was put together. From the cystoscope they were able to determine that the vagina is connected into her urethra (pee-tube). I believe it was the x-rays from the VCUG that showed exactly were the connection was and how everything was placed. My understanding is this test will also show how the pee flow goes. From all of these various tests, Olivia's ped urologist was able to explain the type of reconstructive surgery she will need (6-hours yuk!). Together we decided to wait until she is about 4-5 for the surgery to take place - that is unless she starts having related problems, such as urinary track infections. My hope that doing it at this age we will perhaps avoid some of the scar tissue that sometimes forms; she will be larger and easier for the surgeon to operate on (he is glad of this); she will be old enough to be a part of the process instead of having it done to her; and finally, maybe we can avoid some of the psychological problems that can occur when this is done at age 9 (right before puberty). Hope this helped, sorry it is so long
JanetD
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