Here are two web sites that will help you understand why they did the surgery.... http://www.meddean.luc.edu/lumen/MedEd/urology/cah.htm http://www.hopkinsmedicine.org/pediatricendocrinology/patient.html My daughter died from an adrenal crisis at age 2 from a fever because the stupid endo on call insisted that all I needed to do was double the cortef and stop calling him.... so this issue is mute for me. I wish this was the only concern of CAH...but it is NOT!!! Concern yourself with proper CAH management!!! Know that a fever or vomiting can kill your child!! Never take that for granted. If there was an archive button on this page, you would have seen posting about other children that have died from fever and vomiting. Know how to give the solu-cortef (you can not over dose but if you do not give it... the child can die). Here is a web site with step by step pictures on how to give solu-cortef... http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf Do not let a doctor tell you that vomiting and weight lost (growth) is not an issue... it is serious!! Signs that the CAH is not being managed right!! Give the meds on schedule and have the OH17 (between 6 and 8 am), plasma renin and hormone levels (testerone) tested every 3 months...