I have purposely remained silent because I have a boy with CAH. I felt that I didn't have the right to have an opinion on this heartbreaking subject. I can't tell you how it pains me to see this topic come up over and over again. People are offended and mean spirited comments are made in haste. That is not what I come to this site for. This is a message board. You have all delivered your messages many times. Now it is time for each individual to reflect among themselves. Don't get me wrong, I believe that there is power in infomation and knowledge and I am happy to know both sides of the story but I feel that you are going in the wrong direction. The people you should be focusing on are the parents who have asked for information regarding surgery for their new born child. These are the parents that may welcome your information. The parents who have already had the surgery done will most likely be inclined to take the DEX during the next pregnancy thereby removing the need for surgery - in most cases. I can't imagine why you are so surprised by the reaction of the parents who have already chosen the surgery. They made a very difficult decision which I know was painful and terrifying. They have to cling to the hope that they did the right thing. They need to hope that their child or children will grow up to be healthy and well balanced individuals. Isn't this what we all would like for our children. After all, they can't take it back. I am very impressed with the conviction that some of you have exhibited in standing by your beliefs that surgery is something that should be decided at a later date or not at all. I would like to add that perhaps this same argument could appy to the title of "Intersexed" as well. I will first say that I am quite confused by the whole thing as my son is most definately NOT "intersexed" and I know many girls that are not virilized and so they also do not fall into this category. Since it is a certain group of girls who have CAH and have a certain criteria that may classify them as "Intersexed", shouldn't that also be left up to them to make that type of decision as they get older? It is certainly not something that should be entered into lightly just as the surgery shouldn't. (Being labled as fat or obese is something that is more readily decernable unlike CAH). I will add this - I recently had a pregnancy scare (and it saddens me to say that I was scared) and I went over all the choices I had. I had definately decided to take the Dex and also, if the baby was virilized, postpone the surgery decision to a much later date. The test turned out to be a false positive and all the stressing out was for naught. I realized during that period of time that there is simply not enough emotional support available for people who have CAH and their families. These are extremely serious decisions that must be made and can really take the magic and pleasure out of having a baby. This is a difficult disorder to say the least and has been known to tear some families apart. All I ask is that we show a little compassion for each other as well as courtesy and respect. Each and every one of you deserves a round of applause for dealing and coping with the many problems that may occur when a child is born with CAH. Perhaps one day we will all end up agreeing on this subject, but until then may I suggest that this type of heated discussion be continued on the "chat board"? That way those who want to participate actively can do so and those of us who wish to post other messages can do so without feeling awkward. CAH is a very rare disorder and we need to stay united in this fight for better treatment and a cure. I am in the process of looking into fundraising for the purpose of research in the areas of emotional and physical problems as well as for follow up in all aspects of this disorder. If we are successful enough, I hope to form a foundation like "The Ryan Foundation" which recently hired a scientist who found a cure for a very rare disorder. We can hope can't we? Wish me luck. Peace to you all.