My son Anthony has CAH and this wasn't diagnosed until after he was born.

Anthony was extremely ill for the first 6-7 years of his life with the CAH, he is also deaf and has hypoglasimia. Until recently he has been much better, nothing more than the usual bout of illness, then December last year he started been very ill, this went on for just over 6 months. In and out of the hospital, sickness, tiredness, lethargic, headaches, abdoman pain. He had every test possible and every a scan, yet the hospital could not confirm what was wrong with Anthony. Our suspisions was that he was going through pubity and his body could not cope, yet the hospital just dismissed this.

I would love to hear from anyone who had or knows someone who has CAH and can let me know about a child with CAH and is going through pubity.

Anthony is our only child as I don't think I could go through this again with another child that has CAH.

 

Thank you for taking the time to read my message and look forward to hearing from anyone.