Putting together my information packet for new parents with CAH kids, I found a need to add something else. I have found a huge need for emotional support for these children. From dealing with blood draws to having their gentials examined time after time. Emotionally I find it could be hard on these kids. Having their gentials examined and touched has got to be emotionally hard on them. From it feeling good to have them examined and them feeling as if it were a bad thing to perhaps have those feelings to perhaps feeling as though they were violated in some way. We preach so often about touching and privacy of their own bodies. One would have to be confused some times. I never want to assume because I am open and honest with my daughter that she will be more than happy to give me details on how she feels. NEVER ASSUME. I will be there the best I can but I feel if I have some counselor type of aspect it could assist me better in helping my daughter. Both male and females have to be examined for any changes. With their genitals already looking different than others already may put them in the uncomfortable mode. (male or female surgery done or not done) (late onset, ect.) We as parents do the best we can to encourage good self esteem. That is not what I am getting at. Perhaps all the encouragement and self esteem is not enough. Perhaps there is more to give them support wise. I know there are counselors specifically for this. I also see a need for sibling support. Perhaps they want to know why they don't look like their brother or sister "down there". Why are they special? Will they themselves have to take pills like their siblings? Will their sibling die? (If they heard CAH is a disease they could be under the assumption that a disease is a death sentence like Aunt so and so died of a disease) You never know what is going through these kids heads. Another concern is these kids going through early puberty. Lynn, your posts really express the emotional aspects of early puberty. I mean this is not an every day occurance like, "Mommy this one won't share with me kind of thing." So not that I don't think the parents reading this is cabable of talking with their own children. I just think if there is something available for the parents that may find it uncomfortable to talk about this stuff or needs a little more than what they already have to offer. Any thoughts please post or email me at dlmack1@juno.com. Thanks!