As I said on Sunday night -- MAGIC was wonderful.  It was great being with a group of people who understood (nothing against my family and friends). 

On a side note, Olivia did real well.  Some of her adoption attachment issues are becoming less and less.  When we headed home on Sunday morning, she did not want to go (she liked the swimming!).

I didn't take notes (too much to absorb for me being there the first time), but I'll share what I remembered.  Dr. Pang was the pediatric endocrinologist and Dr. Chaviano was the pediatric urologist who spoke in the CAH educational sessions.

1.  It appears that there really is a potential problem with bone density with CAH.  Dr. Pang indicated that there hasn't been a large enough group to study, but she has seen a loss of bone density in several youth.  (I know this has been discussed on the board in the past)

2. There is no indication that a 1 mg Cortef tablet will be produced. (Seems rather silly to me, but I guess it all comes down to dollars and cents)

3. There is not much CAH research currently going on -- the money isn't there.  The last two proposals submitted by Dr. Pang have been turned down.

4. Some doctors are finding that for some of their patients to be controlled, the Cortef needs to be given 4 times a day instead of 3X's or 3X's instead of 2X's. 

5. Dr. Chaviano discussed surgical aspects of girls born with CAH.  (I found this very interesting.   There is a very large variation in the girls so there really is no single right answer.)

6.  In one of the sessions, Dr. Pang's endocrine nurse reviewed giving injections and then had us practice on an orange. 

It was just great being with other other parents and children.  We had the chance to talk a lot about CAH, but also about other things.  MAGIC did a great job of making it a "Family Conference".  I would encourage everyone to try to attend.